dvbbs
收藏本页
联系我们
论坛帮助
dvbbs

>> 癌魔尚未征服,同道仍需努力!让我们共同期望人类最终战胜癌症的一天!
搜一搜更多此类问题 
肿瘤咨询在线论坛学术园地『 肿瘤专业 』 → 新手指南: 有关癌症的讨论组

您是本帖的第 2248 个阅读者
树形 打印
标题:
新手指南: 有关癌症的讨论组
DOCTOR
帅哥哟,离线,有人找我吗?
头衔:业余作家
等级:超级版主
文章:187
积分:1105
注册:2002年6月4日
楼主
 点击这里发送电子邮件给DOCTOR

发贴心情
新手指南: 有关癌症的讨论组
新手指南: 有关癌症的讨论组
    E-mail discussion groups是利用E-mail的广播功能就某一专题交流信息的工
具,医学和其它专业都有许多这类讨论组。下表列出了一些常见的有关癌症的讨论组:
讨论组名 主 题 和 Listserver/WWW
AA-MDS-TALK 再生障碍性贫血和脊髓发育不全综合症
ADEN-CYST (Unmoderated)面向Adenoid Cystic Carcinomas患 者、父母、亲属、友人、研究者和医师,讨论临床及非 临床的问题。
ANGIOGEN (Unmoderated)面向PhD水平、正在研究tumor angiogenesis inhibitors及其可能的临床应用的 科研人员及医师。
BCMD 血球、分子和疾病;A peer-reviewed journal.
BMT-TALK 骨髓移植 (moderated)    http://www.ai.mit.edu/people/laurel/mbt-talk.html
BMT-DR 骨髓移植(for DOCTORS);面向医师、PhD和其它科研人员
BRAINTMR List 脑瘤,;LISTSERV@MITVMA.MIT.EDU
脑瘤研究/支持组,讨论与各种脑瘤(良性或恶性)有关的 论题,与各种人员(脑瘤患者及其家庭、 支持者、 医学教育人员、脑瘤生长和治疗的研究人员)共享信息和经验。
BREAST-CANCER 乳腺癌;讨论任何与乳腺癌有关的问题
LISTSERV@MORGAN.UCS.MUN.CA
CANCER-L 癌症各领域;一个很好的支持组
LISTSERV@WVNVM.WVNET.EDU
CARCINOID 类癌在线支持组(Unmoderated);面向患者、父母、友人、
研究者及医师;讨论临床和非临床等问题
CELL-BIOLOGY/
bionet.cellbiol 细胞生物学;包括细胞水平的癌症研究
http://www.bio.net
CLINICAL_TRIALS 临床试验;majordomo@world.std.com面向那
些对临床试验的设计、管理及实施感兴趣的人
CTF 临床试验(Unmoderated);LISTSERV@GARCIA.COM
To help those seeking clinical trials for any
probelm to communicate with hospitals and other
medical providers offering the same.
Medical facilities are urged to subscribe to the list and post detailed descriptions of trials
they areconducting or intend to conduct.
CLL 慢性淋巴细胞白血病 (Unmoderated);面向患者、家庭、
朋友、研究者及医师;讨论临床和非临床等问题
COLON-CANCER 肠癌(Unmoderated);目的是鼓励肠癌患者、他们的友人和
照顾者之间的讨论,讨论治疗、疗效及与肠癌有关的疾病
CSHCN-L 面向需要特殊健康关怀的儿童
CTCL-MF 皮肤T细胞淋巴瘤;面向患者、家庭、友人、研究者及医
师,包括患者的体验和支持、新的研究信息、临床
试验和对当前治疗实践的讨论
EC-GROUP 食管癌;面向医师、患者及其家庭,进行关于治疗好的和
坏的方面的对话,提供个别的支持
FACING-AHEAD Helping to face the death of a loved one and its aftermath  
GEN-ETHICS The Human Genome Project: Ethical, Legal & Policy Issues GEN-ETHICS is a list to discuss the ethical, legal and policy implications of the
Genome Project and its clinical applications.
GVHD Graft Versus Host Disease Discussion Group is a moderated list for people who have had a Bone Marrow Transplant
and who suffer from Graft-Versus-Host-Disease. Anyone touched by GVHD is WELCOME!
GYN-ONC 妇科癌症(Unmoderated);面向患者、家庭、友人、研究者
及医师;讨论临床和非临床等问题
HEM-DR 血液学医师;私人讨论组;邀请血液学和血液或骨髓疾病
领域的医师、PhD和有关的科学工作者参加
HEM-ONC 血液学疾病(包括白血病、骨髓瘤、淋巴瘤,..., Unmoderated); 面向患者、家庭、友人、研究者及医
师;讨论临床和非临床等问题
http://walden.mo.net/~lackritz/hemonc.html
LISTSERV@SJUVM.STJOHNS.EDU
HODGKINS 霍奇金氏病; LISTSER@sortar.org
为患者及其支持系统提供巨大资源;由Pete Guethlein
(自己就是霍奇金氏病患者)发起
http://www.deltronix.com/public/hodegking/home.html
HOSPIC-L 讨论:1.The general philosophy and approach to Hospice care.
2.Specific approaches to relieve pain and dis-EASE, including traditional modern
medicine and alternative therapies.
3. Specific populations in which the Hospice approach may or may not be appropriate.
4.Situations in which the Hospice approach may or may not be appropriate.
5.How to educate physicians, other health professionals, patients, families and friends about Hospice care.
HOSPICE
-VOLUNTEERS The Hospice Volunteer Mailing List is conceived
of as an extension of the volunteer meeting,
where questions and ideas about helping patients
are discussed, and the feelings created by such
work, along with ways to deal with them, are shared.
HUM-MOLGEN 人类分子遗传学;向有关人类分子遗传学领域中非商业的
公告和问题开放;
参加者为临床遗传学家和分子生物学家、医学或生物学学
生以及其它对该领域有兴趣的人
http://www.informatik.uni-rostock.de/HUM-MOLGEN/
LISTSERV@NIC.SURFNET.NL
IBC 炎性乳腺癌;主要面向炎性乳腺癌患者或关注他们的人,
也欢迎对此病确实感兴趣的任何人
IROJC 因特网放射肿瘤杂志俱乐部; 面向放射肿瘤学家
KAPOSI Kaposi肉瘤在线支持组(Unmoderated),面向患者、父
母、友人、研究者及医师;讨论临床和非临床问题及其
进展
KINDEY-ONC 肾癌(Unmoderated)面向患者、父母、友人、研究者及医
师;讨论临床和非临床问题及其进展,包括肾细胞癌和
肾盂移行细胞癌
LARYNX-C 喉癌在线支持组(Unmoderated),面向患者、父母、友人、
研究者及医师;讨论临床和非临床问题及其进展
L-M-SARCOMA 平滑肌肉瘤(Unmoderated),面向患者、父母、友人、研究
者及医师;讨论临床和非临床问题及其进展
LIVER-ONC 肝癌(Unmoderated),面向患者、父母、友人、研究者及医
师;讨论临床和非临床问题及其进展
LUNG-ONC 肺癌(Unmoderated),面向患者、父母、友人、研究者及医
师;讨论临床和非临床问题及其进展
LYMPHEDEMA 淋巴水肿(Unmoderated),面向患者、父母、友人、研究者
及医师;讨论临床和非临床问题及其进展
MaleBC 男性乳腺癌(Unmoderated),面向患者、父母、友人、研究
者及医师;讨论临床和非临床问题及其进展
Mantlecell Mantle Cell Lymphoma Discussion List includes those diagnosed with mantle cell lymphoma or
their relatives as well as interested healthcare professionals. Since this is an uncommon form of
lymphoma whose treatment is in evolution, many oncologists are unfamiliar with it. The discussions aim to educate and empower all participants regarding all aspects of this disease.
MEL-L 黑色素瘤,面向患者、研究者及医师,交流信息和提供支持
MOL-CANCER 消费者(Consumer)讨论组
http://www.meds.com/forums/consumer.html
mol-cancer@lists.meds.com
MOL-CANCER-PROF Healthcare Professional Discussion Group. forum requires registration and is for health care professionals.
Majordomo@lists.kbt.com  
MPD-NET MPD-NET is sponsored by the MPD Research Center, Harriet S. Gilbert MD, Director and hosted by ACOR. This list focuses on providing support,
discussion, information and treatment options for patients, doctors, family and friends interested in the myeloproliferative disorders: polycythemia vera, essential thrombocythemia, agnogenic
myelodysplasia and myelofibrosis.
MPD-SUPPORT-L A myeloprolific disease mailing list focusing on polycythemia vera, essential thrombocythemia, and agnogenic myeloid myelofibrosis.
Anyone - patient, family member, or health professional, is welcome to join.
MYELOMA 多发性骨髓瘤(Unmoderated)面向该病及other plasma cell neoplasms患者、父母、友人、研究者及医师;讨论
临床和非临床等问题
NCCS The National Coalition of Cancer Survivorship Electronic Discussion Group
NHL-L 非霍奇金淋巴瘤 (Unmoderated)
ONCONEWS Oncology Electronic Newsletter is a moderated list to broadcast Oncology News to Researchers,
Physicians and Patients. Any information related to advances in clinical oncology, basic research is welcome.
OVARIAN 卵巢癌和其它卵巢疾病(Unmoderated),向患有卵巢癌和其
它卵巢疾病(如卵巢囊肿)的人提供支持
LISTSERV@SJUVM.STJOHNS.EDU
PAIN-L 疼痛 PAIN-L includes a broad range of topics:
the philosophical approach to dealing or coping with physical and emotional PAIN and the
frustration many of us feel about what is perceived to be a lack of responsiveness by
others to that which causes pain, as well as inadequate and inaccessible medical care, and incorrect medical methodology.
PANCREAS-ONC 胰腺癌 (Unmoderated),面向患者、友人、研究者及医
师;讨论临床和非临床问题及其进展
PARTB-L PARTB-L Covers coding, billing, and reimbursement in Medicare, private insurance and managed care plans.
This list is designed to assist the needs of hospital administrators and is not intended for the use of patients.
PED-ONC 儿科肿瘤(Unmoderated),面向父母、亲友、研究者及医
师;讨论临床和非临床问题及其进展,包括患者的体
验,
psychosocial issues,新的研究,临床试验以及对当前治
疗实践的讨论
PEDIATRIC-PAIN  儿科疼痛,有关的主题包括:临床问题、研究、会议公
告、书籍简介 and administrative aspects of children's pain management
PROSTATE 前列腺疾病(Unmoderated),面向父母、亲友、研究者及医
师;讨论临床和非临床问题及其进展,
包括前列腺炎、BPH和前列腺癌
LISTSERV@SJUVM.STJOHNS.EDU
RARE-CANCER 罕见的癌(Umoderated),讨论临床和非临床问题及其进
展,包括患者的体验,psychosocial issues, 新的研
究,临床试验以及对当前治疗实践的讨论
R-BLASTOMA 视网膜神经胶质瘤在线讨论组(Unmoderated), 面向患
者、友人、研究者及医师;讨论临床和非临床问题及其
进展
RADONCJC 放射肿瘤学
www.bio.net/hypermail/RADIATION-ONCOLOGY/
biosci-server@net.bio.net
SARCOMA 肉瘤在线讨论组(Unmoderated), 面向各种肉瘤患者、家
庭、亲友、研究者及医师;讨论临床和非临床问题及其进展
SickKids For Kids with Chronic/Acute Illness. SICKKIDS,
for kids who are themselves ill, offers an open forum where kids may exchange information,
share their feelings, and establish friendships with other kids dealing with similar issues.
This list is unmoderated in that messages will not be evaluated for appropriateness prior to posting; however, they will be supervised by adult listowners. Grown-ups will not be permitted to participate on this list
as its purpose is to provide kids with their own safe place to share.
STOMACH-ON 胃癌在线讨论组(Unmoderated), 面向患者、友人、研
究者及医师;讨论临床和非临床问题及其进展
TC-NET 睾丸癌(Unmoderated),面向患者、家庭、亲友、研究者及
医师;讨论临床和非临床问题及其进展
THYROID-ONC 甲状腺癌胃癌在线讨论组(Unmoderated), 面向患者、友
人、研究者及医师;讨论临床和非临床问题及其进展
UROLOGY Network 泌尿科 Subscription to the list is monitored,
and is limited to professionals in the area of urology and related fields.
WSMG-NET Waldenstrom's Macroglobulinemia Cancer Online
is a mutual support group composed of individuals who have Waldenstrom's Macroglobulinemia and their family members.
They share their experiences, strength, and hope to help each other live each day more meaningfully.
    Listserv是自动维护和传递电子邮件列表的一套软件系统。每个讨论组
有自己的 Listserv和邮件列表。其中有些是“开放”的,列表中所有人都
可以向整个列表发送邮件;也有一些是“封闭”的,只有特定的人才能向它
发送信息。参加这些讨论组的方法是:向你感兴趣的讨论组的listserv发一
封E-mail, subject 行不填,信体第一行为:
 subscribe 讨论组名 你的名字
例如要参加乳腺癌讨论组:
    发E-mail到: listserv@morgan.ucs.mun.ca
    Subject行 :(空)
    信体第一行:subscibe breast-cancer yourfistname yourlastname
很快你会收到一封电子邮件,它测试通讯是否正常,要求你确认参加。回信
确认后,你的名字就被列入了Listserv的列表中,你就能够参加乳腺癌组的
讨论活动了。
    为了方便人们参加或撤消参加这些讨论组,以下两个地址设置了自动提
交网页。在这些网页上列出了与cancer有关的讨论组,各组的简短说明以及
FAQ (常见问题回答)。你只要在上面选择好讨论组,填写了姓名、电子邮件
地址后,就能参加或撤消参加这些讨论组了。
 http://oncolink.upenn.edu/forms/listserv.html
 http://medinfo.org/lists/

如果你我不曾相逢 也许 心绪永远不会沉重 如果真的失之交臂 只怕 今生今世也不轻松
ip地址已设置保密
2002-7-15 6:38:33

 1   1   1/1页      1    
网上贸易 创造奇迹! 阿里巴巴 Alibaba
Copyright ©2000 - 2002 chinaonco.net
Powered By Dvbbs Version 7.1.0 Sp1
页面执行时间 0.07813 秒, 4 次数据查询